Eve, I think you should gather some photos of family and see if there is one side that is more dominantly droopy. There are some CMSs where people have too much acetylcholine. That's why knowing exactly what you have is so important. Those people actually, for example, take quinine (as is found in tonic water). That would make someone with MG or other CMSs worse. And people with LEMS.
There's also something called Familial ptosis, however it isn't fatigable and it doesn't involve more than the eyes.
I am so appalled at the treatment patients have in the NHS. I just don't get it. So many doctors seem so illogical and unscientific. And the way they treat women makes my blood boil.
You probably figured out The Sixth Sense in the first minute, as I did (if you saw it).
I hope you get answer soon!!!
Annie