Yes I've been on Lyrica and opiates for 3years and it's totally ruined my sex life I have chronic pain from a saphenous nerve neuropathy in my knee post surgery I found my libido went to 0 , plus I didn't feel like initiating sex with my already overburdened wife looking after me and the loss of a husband bringing in the income in the family. Anyway, I finally realized that one problem was the opiate side effect of lowering testosterone levels (mine was near 0) so supplements have helped that.
The other weird thing was the parasthesia I would feel on urinating and ejaculating . The neuropathic pain in my knee still fires off when I empty my bladder and orgasm is sort of nice but hard to do and not pleasant anymore ...an almost electrical feeling . Very strange stuff. So we thought it might be the Lyrica or my neuropathy has set up some kind of weird feedback loop with my lower spinal cord and my sacral nerves. Not exactly text book medicine.
Anyway I am currently at half my previous Lyrica dose a month ago...pain no worse but no changes in weird symptoms mentioned above.
Anyone else had any experience similar or has advice on weaning off Lyrica?
I am currently on 75mg bid and methadone 12 mg qid. I am currently waiting for a PNS trial after failing 2 SCS trials. After that my last kick at the can seems to be DRG stim (dorsal root ganglion) stim. The Axium stim mentioned above I believe is the trade name for the DRG trial in the US that I cannot participate in because I am in Canada.
I found all your posts very helpful