For me it was about 9 different doctors.....neurosurgeons, cardiologists, Primary doctors, and pain doctors. It took about 3 and a half years before a vascular surgeon sat me down with the cold hard truth.
He told me "they" knew all along that it was RSD, but nobody wanted to be the one to tell me. There was not a cure, and it was caused by the femoral artery being blocked for 7 days, and he called it reperfusion injury. Where the blood had been blocked and festered in the leg, and then they fixed it, and let the blood flow back into the leg pushing the nasty blood into my brain causing damage.
Plus the ischemia in the leg was severe and was not curable. He said it should have never happened, and they should have treated it right away....because they knew it was going to cause this damage and RSD. If they would have started treatment that very day....it would not have been as bad as it is.
Then a few months later I had a neurosurgeon sit me down, and asked for my cane. He held it up and told me this is what he expected my leg to look like when I walked in after not seeing me for about a year. He told me...I dont know what you are doing.....but never stop! If you do.....it wont be long and your leg will look like this cane!.
I have pushed the pain limits ever since!