We have the same thing here in the US. All the doctors do there own separate piece of the puzzle. No one wants to take the time to investigate every avenue to get the complete puzzle.

I have searched for a diagnostician in PA and there does not seem to be one. I tried to go to the undiagnosed diseases section at Hopkins but they wouldn't take me because they said I have the diagnosis of SFN. They told my neurologist if any other symptoms show up try applying again.

It really is a shame your doctor won't send you for a small nerve biopsy. It is not hard to have done. Maybe you should try searching for a neurologist who does them.