Hi Dan - - welcome!!

Sorry to hear what you have been through. Sounds like it hit you pretty hard!

I've been one of the lucky ones who has been fully supported by Mestinon for the last 5 years - but there are many here who have also (unfortunately) experienced a crisis.

The most important thing is for you to learn the signals your body is giving you...and to LISTEN TO THEM. MG isn't something we can train our muscles out of! If you are having trouble talking - - don't just stop talking -- stop talking and take a nap! If your legs feel weak, sit down for MANY minutes...not just a moment. If you have trouble breathing - call 911 (especially since you have already had a crisis).

Don't expect any day (or even hour of the day) to be the same as the last day (or hour). Your body will teach you to listen to it. It's up to you how quickly you learn.