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Old 05-15-2014, 05:39 AM
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imdan imdan is offline
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Join Date: May 2014
Posts: 19
10 yr Member
imdan imdan is offline
Junior Member
imdan's Avatar
 
Join Date: May 2014
Posts: 19
10 yr Member
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Hi Anne and suev

thank you for the info. unfortunately, I have asked and get no answer what they mean by non musk. I will attempt to ask again but the way everything went down, I went into crises the same week all the Neuros were at a training so each day was another looking in on me, and than they compare notes with each other. As far as my tests, I have had cat scans mri's xray's, blood works confirmed high antibody s . They found no issue or tumor with the thymus gland. No I was not prescribed mestinon.

I had no insurance and have been trying to get insured for a while. Unfortunately I was in the gap on ssid to much for medicaid not enough for ACA subsidies, so I ended up going to hospital on a financial assistance program from hospital. at the mercies of the hospital network.

I finally get medicare in a few months, just trying to get there, bills are a bit overwhelming.

I have a specialist picked out who just happened to assist me in hospital over one weekend, he sat and explained some things to me. He specializes and works with the university's in and around MO, seems sharp. I will be contacting him today,hopefully I can get in some university program ... I don't mind being a study if it helps others.

yesterday I requested all my records from hospital, that is in the works, it should give me more info.

Dan
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