Hi annie , as I told Ellie, I am a newbe. I am experiencing the same things she is. I have the droopy eye,the extreme exhaustion. I am on Mestinon 3/60mg a day.
I have just seen a small bit of results. I feel a bit better after I take one.
I am afraid of a spinal tap and of ivig. I hope my new second opioion sheads some light on what to do. Hope to talk again