I agree with Annie ...I was put on prednisone 60 Mg in Jan 2013 along with cellcept .. Started tapering down in the Fall ...5 MG at a time for a week at a time ... Got down to 5 MG a day by Feb 2014 ...and all was great ...Then went to 2,5 MG alternating with 0 MG ... Then my MG said .".uh uh ...I'm not submitting that easy " ,...really felt bad for weeks until I went up to 30 MG again ...Been coming down slowly and still not away from my fatigue . Ciurrently at 15 MG daily ...
I like Annie's idea of alternating with a dosage and then ..zero the next day ....I'll try it ..
Your individual MG will let you know how your weaning is going much more accurately than a neurologist ... They may know MG but they don't know your MG ...Let your body be the decider
Quote:
Originally Posted by Panorama
Here is Stanford's Recommendations for the Prednisone Taper from daily 60 mg for last six weeks: - 2 Weeks at 40 mg daily.
- 2 Weeks 40/30 mg alternative day dosing.
- 2 Weeks 40/20 mg alternative day dosing.
- 2 Weeks 40/10 mg alternative day dosing.
- 1 Week 40/0 mg with a follow-up meeting to evaluate progress.
- No Immunosuppressant.
If I want to go with an immunosuppressant, Stanford recommends Imuran, not Cellcept. But starting an immunosuppressant now would require a 3-year commitment to it.
The Stanford neurologist believes that there is a 50 percent chance that I will be relatively symptom free with little or no ongoing Prednisone and with no immunosuppressant.
The Stanford neurologist also wants me to cut back on the Mestinon, only using it if it is necessary. Currently I am taking one 180 mg Timespam Mestinon at bedtime, with another three 60 mg Mestinon tablets during my waking hours. The neurologist wants me to cut out the 180 mg Timespan at bedtime. Then see if zero, one, two, or three of the 60 mg tablets are needed going forward.
I'll get back on that . . .
-Mark- |