What brand of IVIG did you have? Did they even consider a different one? Did they check your kidney function WHILE you had kidney pain? Could that be from not drinking enough water before, during, and after?

If you didn't have your kidney function tested, you might want to talk to your primary doctor about that.

Someone I know had hives from Rituximab, but they did not stop the treatment. She ended up being okay.

Could it be that doctors are so afraid of lawsuits from hurting people that they are now getting really worried about the smallest issue? Not that hives are a small issue! I'm only asking the question.

I'm sure that you are really frustrated! The treatment options for MG suck. And you take risks with every one of them.

Are there any IVIG vets who can chime in on the different brands of IVIG? I haven't had it, so I can't comment on that.

I'm sorry things are not working out as you had planned. I hope you and your docs can figure something out.


Annie