I am hoping some posters out there with experience in HNPP can help me with this question.

My symptoms began in mid-Frebruary 2014, starting out as tingling in the toes that has progressed to painful numbness. The numbness seems to be well controlled by both b-12 and ALA supplements.

In addition to the numbness, I also am experiencing intermittent weakness in my left leg, around the area behind my knee. At first I thought that the weakness had no rhyme or reason to it, but I am starting to suspect that it is my daily walks (50 minutes or so) that are exacerbating it.

In addition, I am noticing that certain parts of my body are going numb when I lie in bed at night. Last night I awoke to realize that the pinky fingers and ring fingers in both hands were numb, which would suggest ulnar nerve entrapment/irritation, yeah? In general, my arms have become quite susceptible to falling asleep when I'm in bed, whether it's when I'm lying on my stomach propping my torso up with my arms so I can do work or when I'm just trying to sleep.

I have never heard of a single person in my family suffering from anything remotely like HNPP, but I have heard that there are those who develop this hereditary form of neuropathy who also have no counterparts in their family history.

So my question is, are these symptoms typical of neuropathy in general, or are they suggestive of HNPP? Many thanks for whatever input you folks might be able to give. I have an appointment with a neuro-muscular specialist in a few days, so hopefully I can get some answers soon.