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Old 05-20-2014, 09:27 AM
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
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Quote:
Originally Posted by Jon_sparky View Post
I used to use my flip phone as a alarm, but my hands would be so numb, I couldn't open the phone to turn off the alarm... I am going to the Neurologist next month. My hands and feet are getting worse too, but my PN has been very slow in progression over the last 28 years. I thought of PNPP, but mine is probably just hereditary neuropathy...
Good luck with the doctor visit! The problem with this malady, they can't just give you a pill to make it better...
What is PNPP? Do you mean HNPP which is hereditary also.

http://www.hnpp.org/

The whole site is full of information. There is DNA blood tests for it as well as for CMT and for many others.
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