Hello!
I am SO incredibly happy to have found this community & others who are in a similar situation to me - I didn't think I would ever find such a place!!
I live in Australia and my injury was a severed spinal accessory nerve, which occurred during a routine 2-pass 16 gauge cervical lymph node core biopsy in October 2012.
In January 2013 I had a surgical repair (glue & stitch) of the neuroma which was unsuccessful.
I have CRPS, left shoulder weakness, left arm abduction of only 20-30 degrees, trapezius muscle wastage, head/neck/shoulder/arm nerve pain 24/7.
Am currently taking Lyrica, Targin and Oxynorm along with paracetamol and am also in counselling with antidepressants starting today.
My case is going to court at some stage in my life!!
I was told today that I have a permanent disability with no chance of recovery.
The last specialist I saw for a medico-legal opinion suggested the Eden-Lange Procedure for me and I am only just researching it now - it's all SO scary I don't really know what I'm doing.
Thank you for listening, I really am so emotional to have found you all and I hope that there are others of you like me out there that I can talk with and find out more about your treatments and possible help for myself along the way.
Thank you so much!
Princessmorticia [Sarah]