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Originally Posted by Diandra
hi HD, geez, 21 is so young to have to be dealing with all this yet how fortunate you have found a partner who has similar issues and understands. my husband used to say, I wish It could be me for awhile instead of you dealing with all these health issues and all I can say is, I would never wish this on anyone, especially someone I love and I am sure your fiancé feels,the same way.
Ms Eva...I certainly understand the invisibility of your health issues and the lack of compassion by some folks. It is frustrating. I do appreciate your reminder to stop beating up on myself for my limitations. I try so hard not to but my husband married a well employed, healthy woman. and now he has me...(..Lord, that sounds awful ) and he just did not sign up for all this. He is a dear and says, I didn't sign up for it either. I wil work on accepting what I can do.....Thanks, D.
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Diandra,
I, like you, feel, my husband married an independent woman (he said that was what attracted him to me (we met while both of us were widowed). I really feel badly for him. He does not complain; but when I mention having really a bad day, he rarely responds. I really think he has no idea. But, that could be just my own looking for understanding.
Understanding is another issue with so many chronic pain sufferers. My husband and I meet with his never married sister for lunch about once a month. I don't go out often; but when I do, usually try to go to restaurant that service is pretty quick. His sister often makes little jabs especially about a a foot rest I have to keep my back of legs from feet hanging on floor aggravating the PN. Also use elbows on table to keep pressure off spine pain. I shouldn't let these things bother me; but unfortunately they do. I mentioned a while back about her making me feel like I am faking. Instead, I was told there was not a mean bone in his sister's body.
If we could let go of guilt and wanting others to understand we are in pain and not making up excuses, etc.; most of us would probably feel much better and less depressed. Need to really work on myself and let go of these feelings.
Gerry