Hi Denise,

Welcome to NT. Thanks for sharing your background with us. Many here know the frustrations you are experiencing. Sometimes I think the lack of answers are as bad as the symptoms we experience. I am so sorry to hear of your suffering. I wish I had some answers for you or at the least some suggestions. It took 23 years for me to get a diagnosis and then took another 12 years to find a doctor that would and could help me. Sometimes it is a long hard road until you get answers and help but never give up on that. One never knows what the future holds and you may find your answers down the road in time. Dealing with the frustrations (and costs) until you get answers can be devastating and an emotional roller coaster. We are here for you. This place has been a life line for me. There are a lot of very caring people here that not only understand but are also a wealth of information. I hope to see you continue to post.

Happy belated Birthday.