Hi Januarybabe,
It must be difficult dealing with this type of pain and having no real answers as yet.

If it was me, and in light of what your neuro MD had suggested, I'd post over on the MS Forum and see if anyone there has any information that may help you.

Multiple Sclerosis Forum

There are also information threads in the Sticky section.

I don't know your background, so making too many suggestions would not be very helpful.
e.g. Diabetes, autoimmune disorder/s, Fibromyalgia? Nerve pain is associated with many conditions.

In the meantime, pain management needs to be addressed, especially if the medication you're presently taking isn't helping as much as it could.

All the best to you. Keep searching.