Hi, jenng. It's very frustrating to not know what's going on. What that tells me is that you haven't been to see a good enough doctor!

http://www.mayomedicallaboratories.c...s-eval/11.html

http://www.netwellness.org/question.cfm/40086.htm

There aren't that many "regular" neurologists who have experience with autonomic issues. Are you near the Mayo or Cleveland clinics? If you say where you live, someone might be able to refer you to an expert.

Since some of the autonomic diseases can have cancer associated with them, you really need to get some help right away. I'm glad your PET scan was clear (for now).

A consult with a rheumatologist would be a good idea, too (if you haven't done that already). They can assess you for polymyositis, etc.

Also, have you been thoroughly evaluated by an endocrinologist? Sometimes it takes more than one type of specialty doctor to figure something out.

Has anyone done a tilt table test on you, to check for POTS?

I'm sorry you're going through so much. It might not be MG that you have, but it hardly matters what—what matters is that someone figure all of this out for you!

Annie