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Old 05-26-2014, 03:01 AM
kattsqueen kattsqueen is offline
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Join Date: Aug 2010
Posts: 2
10 yr Member
kattsqueen kattsqueen is offline
New Member
 
Join Date: Aug 2010
Posts: 2
10 yr Member
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Originally Posted by carocris View Post
In Nov. 2010 I had this extremely bad headache behind my left eye. Felt like something was pulling from behind my left eye to the back of my head. Tylenol 3 did nothing for it, the pain kept me awake at night. It lasted for about 10 days. Felt really tired too but probably because I was not sleeping. Went to a Neurologist and had an MRI and Evoked Potential test and everything came back negative. Good news right. In the spring of 2011 I had an episode of extreme fatigue, left side weakness, really bad tingling and numbness and I felt I was not walking properely. Lasted anywhere from 2-3 weeks and then everything went back to normal and life was good again. It seems that every fall and spring I have these episodes and they always go away. Also I do experience the tingling and tiredness at different times throughout the year and it comes and goes and I'm not sure what brings it on. I did not pursue it with my doctor since my MRI was negative and besides my symptoms always goes away until now. This time the symptoms won't go away and I'm scared and have nowhere to turn. Its been 5 weeks and I am still very fatigued, tingling/numbess, stiff legs, not able to walk properly (legs won't go as fast as I want them to) :-( I have been referred to a neurologist which I have been told may take months. In the meantime I have to suck it up and contintue with life as best as I can. I am not sure what to do? Any suggestions? Please help me I'm loosing faith. :-(
I think perhaps you should look into Ion Channelopathies such as Periodic Paralysis.. hypo hyper and normo kalemic periodic paralysis and Andersen Tawil Syndrome. These are considered rare disorders but I believe they are rarely diagnosed. They are considered rare forms of Muscular Dystrophy. It took me three months of research on the net to come up with my diagnosis of Andersen Tawil Syndrome. I presented my case to my physician based on my research.. a review of my family history and genealogical tree and my connections to known Founders for rare genetic disorders among the very early settlers of New France.. Canada. Stiffness is also part of my clinical picture (myotonia) and by treating my electrolyte disturbances and avoiding fluctuations in my potassium level through diet and supplementation my condition is greatly improved.. Malignant hyperthermia cardiac conditions and paradoxical reactions to medications like sulfa certain antibiotics and anesthesia. Important note is that stiffness for many may be an indicator of Hyperkalemic periodic paralysis in which case too much potassium could be the reason you are suffering from the stiffness.. I was pretty sure my symptoms were the result of a normokalemic nature as my diet was typically low in potassium high in carbs and sodium.. so I experimented with the recommended diet for hypokalemia and in three days my stiffness disappeared flexibility returned and pain virtually disappeared. Since my diagnosis didn't happen until I reached the age of 53 much damage has occurred to my muscles and I now suffer from permanent muscle weakness.
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