I have not posted in some time except to respond to some other posters. For a short period, I thought I was getting better. My feet were still numb and achey, but not much beyond that. There was some muscle pain, especially in my neck and lower back. Since I work out regularly, I did not think much of it.

The past two weeks, though, the muscle pain moved to my shoulders and became unbearable in my neck and back. And I began to have muscle weakness in my legs and arms which had not been there except periodically in less duration over course of maybe a day or two. I have been seeing a chiropractor for the past two months since the neck pain was bothering me. Other than that, nothing has changed.

On Friday, the pain in my feet became a constant burning and traveled up my lower leg. I have been lying around in pain ever since then and everything hurts. Yesterday I took 200mg of Tramadol and it did not even help.

Just to recap my issues, I am hypothyroid and have had normal thyroid levels with synthroid treatment. Then 3 years ago I contracted a parasite called giardia and began experiencing neuropathy in my feet during treatment. The neuropathy never went away and now I am not even sure if it began before the giardia and just became more apparent when my body was stressed? Anyway, after seeking help I was diagnosed with Sjogrens based on three different sets of blood tests all coming back SSA positive. Then a lip biopsy at Johns Hopkins came back negative. So, I may or may not have it. My neurologist here does not believe Sjogrens is the cause of any nerve pain anyway. I have had every test imaginable and was told in this order that my cause was 1) Sjogrens 2) B6 toxicity 3) mercury poisoning 4) possible nutritional deficiencies.

I have corrected the B6 and mercury levels, and gained 16 lbs. by eating more nutrient dense calories while also carefully increasing vitamin supplementation per the sticky thread. So why all of a sudden are my symptoms the worst they have ever been?????? What step should I take next? My husband is ready to mortgage the house to send me to Mayo! But for what?

If anyone has any clues on where to go next or what questions I should be asking I would so appreciate it. Mrs. D? Dr. Smith? Does this sound like anything you could classify....fibromyalgia? MS? leaky gut issue? Currently I take synthroid for the thyroid, linzess for constipation and tramadol for the pain. I have tried SSRIs, anti convulsants, steriods, IVig therapy. None of these made a significant change so I am not currently on any of them. Plus I recently had a bone density scan and I am dangerously close to osteoporosis and worried to be on any ,ore medications.