Quote:
Originally Posted by Mark in Idaho
random,
Do you take any steps to reduce these stimulations ?
I need to wear sunglasses and a hat to reduce the effect of lights. I also always have ear plugs ready to use. Malls and restaurants are always risky for me.
You may need to learn these trigger minimizing techniques so you can do some normal things. There is no real treatment for PCS. It just takes time for the brain and sensory systems to heal.
Until your neck heals, it may continue to make your PCS symptoms worse. Are you being disciplined with neck posture, especially when resting or sleeping ? It is very important to not aggravate a neck injury so it can heal. It has taken me years for my neck to heal. It has required discipline sleep posture. For me, this was extremely important because my neck injury was causing central sleep apnea. I would just stop breathing if I slept with my neck in a bad position. Now, after years of discipline, my neck is more tolerant of bad positions.
To sum it up, I think you need to accept your current condition as the way things are for the near term. Learn to minimize your exposure to triggers. Learn work-arounds so you can do the things you want to do. Social events may be possible just shorter or with a safety escape plan.
Many of us have learned to live with PCS rather than fight against it. It is possible.
My best to you.
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Hi Mark. I do avoid all stimulation if I'm having a bad day. That said, I have seen concussion specialists that recommend I lightly trigger the symptoms to allow my body to be aware that an issue is still there. I somewhat believe it, as when I subject myself to lighting, etc my symptoms usually subside within 30 minutes to a bearable point.
My update on Betahistine. I tried the drug for the first time last week and although was skeptical it would help in any capacity based on user reviews I've read, it helps me noticeably. It's not a cure all, but I have been taking a very light dose to trial (half a 16mg tab when symptoms arise). It helps quite a bit with the dizziness and I also notice that it brings some mental clarity, likely due to increased blood flow to the inner ear/head area. Don't know what to say, it has allowed me to reduce symptoms, but not eliminate. Knowing that I have found something to take off the edge during an episode is comforting.
I am now thinking of trying Zofran for nausea. I have been using Gravol natural source with Ginger for nausea and does help quite a bit.
I know that I will likely be dealing with symptoms for some time, however not going to sit back and be miserable. I'm a fighter and know that I can better myself with research, trying new things and listening to what my body is telling me. I am at current attempting to get outdoors daily, complete a couple of tasks, whether they be miniscule or not, it's something to feel a sense of productivity during this hard time.