Denise, Iam so sorry for your pain and that you have not yet found a diagnosis.
Have you seen a pain management doctor? If you havent or have and still havent gotten an answer look into the diagnosis of RSD Reflex Sympathetic Dystrophy its a neurological disease in which a nerve has been injured which switches on the signal in your brain saying your always in pain, causes swelling, temp changes, hair changes, all kinds of symptoms and yours sounds just like it. I was diagnosed with it after 6 years and seeing 56 doctors in 3 states. Even if you dont know of an injury that could have caused it many get RSD without a reason and if you look up the symptoms you dont need all to have it you could just have a simple 2-3. RSD is a very debilitating disease its rated 26% high in pain the migil pain index. RSD can be limited to one area or like mine is full body and internal. I have pain everyday when i flare I swell, have color changes, spasms, and many more. Really look into this as I know how it is to live a life in pain without an answer and even if it turns not to be RSD dont give up looking for answers. I know how it is for people not to understand or believe, before I was diagnosed some doctors thought I was nuts and I lost half my family for it including my father as he thought I was making it up and at this time I was only 19 hospitalized because I couldnt swallow cause my nerves to shut down so needed a feeding tube, my hands, feet, and knees contracted in with dystonia and spasms so I couldnt walk and was totally bed ridden, my body was so sensitive to touch because of pain my mom couldnt kiss my forehead, a drop of water on my skin made me scream. At this time I was living in Alaska where I grew up but had to be airvaced to ohio for treatment because the RSD had gotten so bad. not everyone gets that bad but for some and most this disease is as anyone can put it a pain in our lives.

I do hope you find an answer and there is and RSD/CRPS forum on this website if you want to ask more questions about your pain many there can help.

Samantha