Thread: New to RSD
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Old 05-28-2014, 09:29 PM
newtboots newtboots is offline
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Join Date: May 2014
Location: UK
Posts: 4
10 yr Member
newtboots newtboots is offline
Newly Joined
 
Join Date: May 2014
Location: UK
Posts: 4
10 yr Member
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Sorry to hear that you have had problems. Diagnosis can be a real hurdle, so although it seems like dreadful news you should absolutely view it as positive point to start moving forward. Here are a couple things that might help, though i bow to the experiences of others who have more direct experience with CRPS.

1) Maintaining function where you have pain, and using desensitisation techniques where you have sensitivity (preferably under the direction of an occupational therapist/physio) are paramount. Disuse atrophy HAS to be avoided and pushing too hard is also counter-productive.

2) Ensure that every medical professional involved in your treatment has some knowledge or experience in your illness. A well-meaning but ill-informed physio/doctor can really mess you up.

3) Above all be patient, with the illness and yourself.

I'm happy to be corrected by others. These were the 3 things i wish someone had told my partner at the beginning of her journey. May yours be a swift one my friend.
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