Originally Posted by music-in-me

Hi everyone,

I still experience those "spells", mostly when I am around several people and multiple conversations or activities going on. My Neuropsychologist wants me to follow up at Cleveland Clinic Epilepsy Center, though I have had 3 EEG's which all came back without abnormal electrical activities. I am told I stop and stare, usually with a fixed gaze to the extreme right or left, and when I come around, I cannot say anything but , "well", for the first few minutes. I remember some of these episodes, but not all of them.

Is there a test or way to prove what causes these episodes if not a seizure? I thought I was going crazy, since there seems to be no "reason" for these to keep happening to me, since no seizure activity found on EEGs.

Hockey, I am afraid of the "big freezes" too, since I have been sent from Neuro Rehab twice in a month to the ER on an ambulance for these kind. I haven't had these bed ones in about 2 months, so I'm crossing my fingers they don't happen again.

Are you who are experiencing these episodes finding they happen only in crowded or stressful situations, or even when you are alone? Mine can happen either way, but mostly if I am in a busy, crowded environment.

Thanks for you responses. Take care, M-i-m