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Old 05-30-2014, 06:58 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Joan, I'm glad Mrs. D. sent you our way. There are a lot of really great people here, who have loads of good info and support.

My dad had rheumatic fever in the Navy. It led to his aorta being damaged, high BP, and eventual kidney failure. Does your husband have any heart damage? Has he been fully assessed by a cardiologist? If not, he should do so.

I'm not a doctor, so I can't "recommend" any antibiotics. The premed that is often used for dental is Keflex/Cephalexin. Amoxicillin is good, too. No problems for MGers with those drugs.

Two drugs an MGer should not have are Ketek/Telithromycin and the Quinolones.

Here is the MG Foundation website's drug information.

http://www.myasthenia.org/Livingwith...gstoAvoid.aspx

The PDF format.

http://www.myasthenia.org/LinkClick....Q%3d&tabid=318

There's no such thing as a "little bit" of Prednisone, especially for someone with other health issues or someone elderly. And IVIG in someone with any heart issues can be problematic, too.

I highly recommend a consult with a cardiologist first. Then a consult with his primary doctor to go over all drug issues.

Has anyone said that he should have a CT to look at his thymus? That is often standard for anyone with MG. They try to "force" patients to have contrast with the test, but it is NOT required or necessary. Some patients with MG have a thymoma, a tumor of the gland.

I'd also suggest that he have his Vit. B12, Vit. D, and thyroid checked, if he hasn't already.

Having MG is not a simple issue. For example, being out in the heat or getting heated up can make MG far worse. Getting enough sleep is essential, and naps are often necessary. Alternating activity with rest helps, too.

If he has any breathing issues, he should be fully assessed by a good pulmonologist. A neuro manages MG, but so does a pulmonary doctor.

What else can we help with?

I hope you have a primary doctor who can pull all of this together. It's important to not rely only on a neurologist when you have MG. They are specialists, and may not "see" someone's overall health issues.

Please tell your husband that he's welcome here any time, and that I hope he will have his MG well-managed so that it doesn't effect his life too much.

Annie
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"Thanks for this!" says:
mrsD (05-30-2014)