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Old 05-30-2014, 08:42 PM
Joano Joano is offline
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Join Date: Oct 2009
Posts: 212
15 yr Member
Joano Joano is offline
Member
 
Join Date: Oct 2009
Posts: 212
15 yr Member
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Thanks for your quick response to my email, Annie. My husband's primary doctor is a cardiologist/internist, and he sees him twice a year. He doesn't have any cardio problems that have turned up so far.

He went to our opthalmologist when his eye started drooping and he did a thorough exam and couldn't determine the problem but did refer him to the neurologist who ordered the blood work--with contrast--and from that he determined the MG. He also told my husband he had treated his own mother for MG so he knew a lot about it. He's going Monday for a CT of his chest so maybe that will include the thymus (?)--he thought it was for his chest. Also, starting Wednesday, he begins 3 IVIG treatments of gamma goblin. They're going to call tomorrow with more specifics.

"A little bit of prednisone" must be like "a little pregnant." Neither one of us wants him on that for a whole bunch of reasons. I think the pre-med he's been taking before dental appts is amoxicillin. So it's good to know that one is on the preferred list. I knew about quinolones being bad for PN so just assumed he shouldn't take them either--we also don't eat nightshades or wheat. We've both been taking a lot of supplements and probiotics and are in pretty good health except for these nerve problems--strange both of us would have issues with our nerves.

He's a Vietnam vet and was exposed to Agent Orange while over there. When he came home he retired shortly thereafter (in 1975), and I became interested in fortifying his body with vitamins and supplements to try to make him resistant to anything he might develop from the Agent Orange--he was also a red-head and has had multiple skin cancers, including a melanoma. He still works as an engineer for several pool companies in the area--is busy about 3 days a week with that and goes to the airport everyday, goes late and comes home early--it's his business that my son is running now, but he can't stay away. Then he has a nap before dinner and one afterwards.

We live in Texas and I do worry about him in the Texas heat. I don't like being out in it in the summertiime either. Thank goodness for A/C! I've been following your forum ever since he was diagnosed, and appreciate the tips on the two websites which I am going to look at now. He has another appt. with the neurologist on June 10, and he wants him to bring his wife with him! Probably cuz he told him I didn't want him to be on prednisone--some arm tristing maybe??

Thank you again for your quick response. Thanks also for inviting him to visit the website--he doesn't use the computer--says it hurts his eyes.

Joan
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"Thanks for this!" says:
AnnieB3 (05-30-2014)