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Member
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Join Date: Apr 2012
Location: Indiana
Posts: 430
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Member
Join Date: Apr 2012
Location: Indiana
Posts: 430
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It can take a lot to get diagnosed sometimes. Not everyone is lucky and gets dx with just an MRI. I had the MRI and it had all the bells and whistles for MS, but doc still sent me off for spinal. It came back negative. Fast forward 20yrs later, I did another spinal and it came back positive, nice little O-bands you have in your spinal fluid with MS. Thing Im getting at is sometimes you have to do what you have to do to get that dx. I had gone thru every test there is out there for my initial dx 20yrs prior, but because I hadn't kept up with any neurologist over the years, that new neuro put me thru all the tests again like I was new to it, just to make sure. I hated doing it, but I did it. Better to know than not. Good luck to you, and we're all here for you!
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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