Welcome Chloe,
Sorry for the reason you need to be here, but it's a great group!
I care deeply for members on here but can't write much at one time.

Please read all you can on the links others have given. One thing that eased
my fears
early on is that there is no "one size fits all" time line or course of treatment.
We do share our stories of those things for the very reason that medical
community has limited knowledge of this disease.
YOU HAVE TO BE YOUR OWN BEST ADVOCATE WITH THIS! That advice was
given to me by a life saver of a physical therapist. She DOES know
something about this! Gentle physical therapy early on IMO is essential!
I don't have much use of my hand & arm, but I would have none otherwise.
Please don't concentrate on worst case scenarios for now!