Quote:
Originally Posted by Zatochi
Hello DonnaRose
I had MVD surgery 1.5 years after being diagnosed with type 1 TN. The one that causes you to have random SEVERE electrical shocks in your face. My doctors tried all 3 of the major meds for TN but nothing worked for me. During that time I had to quit working and driving. My life was pure misery. After having the MVD surgery, I was totally episode free.  I have been free of this disease for 3 years now. It took me about a month to recover at home and then a month after that I was back to work. Surgery literally gave me my life back. Yes, the surgery is scary (after all they will cut a hole in your skull) but well worth it in my opinion. If you go the MVD surgery route, please find an experienced Neurosurgeon that has performed a lot of these.
My heart goes out to you because I know exactly how you feel....
Ken |
TY so much Ken. The MVD is very scary to me but if it works I can deal with the fear. I have been having problems navigating around this site so apologize for my slow response. I appreciate your help and I am going to ask them to do the surgery. The surgeon I have is at the University of Iowa Hospital and Clinics. The surgeon has been doing them for 20 years. I pray it works because I don't want to go through with this for nothing. I pray we will all stay pain free forever.