Member
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Join Date: Nov 2013
Location: United States
Posts: 363
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Member
Join Date: Nov 2013
Location: United States
Posts: 363
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HI Adalaide, sorry you are having such a rough time right now. I totally understand what you are saying.
It sounds like worship is important to you, and I would hate to see you give up that part of your life. I don't know much about your story, but can you make an accomodation for your CRPSy parts that would signal to people "don't touch"? For me, it is my right leg and right foot. I walk with a cane in my left hand and my husband walks on my right (CRPSy) side and between the two it creates a bit of a barrier between me and people. I also sometimes use my wheelchair, hate it, but it does give me a protective "zone". Just some thoughts.
I also have noticed how many of us refer to "the mask" we wear to get through our day, to function, to not burden our loved ones with the reality of our pain. It is perfectly healthy to take off that mask and unleash the pent up emotions that build up behind it. It takes way too much energy to hold onto those emotions.
Wishing you wellness ~ Lottie
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken . Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.: .
Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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