MsMarkie I was just yelling at a dr the other day when he asked me "is it from your MS or something else?" I said "isn't it your job to find that out?" So sorry you are in so much pain. I hope that you find relief and a good dr. Both are elusive for us I know. And the isolation that comes with a flare up or call-it-what-you-may only serves to isolate, depress and magnify the issue. So its great that you reach out and connect. here, email, telephone... take good care of yourself.
janet
Quote:
Originally Posted by msarkie
Sorry if I bring you down, I just have too many things bothering me right now and I don't know what to do. I don't know what is MS anymore, what is possibly rheumatoid arthritis, and then I have all these miserable digestive issues.
Right now I'm losing my mind over this PAIN between my right shoulder blade and my spine. It effects almost the whole upper right part of my body, and I can't get a good breath. I've basically been in bed for about 3 weeks now. I've tried massage, chiropractic, ice, moist heat, stretches; I went to the GP and got a steroid shot and some Nucynta; I've used Flector patches and Volterran gel and Tiger Balm. Nothing works for long.
And it's not just pain - I'm visibly malformed too. My mid-back is swollen on the right side and my collarbones are uneven.
I'm debating just trying to go to Mayo or to Kansas City to an MS specialist, somewhere they have several different specialists working together. I need a neurologist, rheumatologist, gastroenterologist, dermatologist, and lots of other -ists. Has anyone been to Mayo for treatment/diagnosis? If so, who did you see, and did you like them? There is a lot of MS research in the Kansas City area, which is about 4 hours away from me, but I don't know if they have the multi-disciplinary clinics.
There just aren't many good neuros in this area, not for MS. If there is a good one, they are so overbooked it's impossible to get in. I almost ended up going to the hospital yesterday just because I couldn't take it anymore, but I would have had to call an ambulance and I just couldn't face running up that kind of bill.
Thoughts?
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