It is a mystery esp bc my hand/arm weakness happens 95% during the night time. It is hard to explain how hand weakness can wake one up but it does. I cant grip anything. It is like a temp paralysis.

I remember in grad sch learning about day time immune function vs night time but I have since been unable to find any literature on that. There must be a major hormonal shift that is responsible for this funny business.

BNY, did they ever test you for myositis? I am retrying the IVIG w solumedrol this time.

Annie, the rest of me feels fine (as in my reg sickness but no other big changes ).

Thx guys