welcome Tarie
although we are primarily a forum for support and information related to neurological issues, yet as you can see by the various forums and topics in our community, we are a multi-faceted place
So, wherever you feel comfortable discussing this serious issue for your daughter and grandchildren is fine
We have the areas suggested by Rogue, and we also have a Children's Health section, especially as the wellbeing of your kids is involved and perhaps others there have experienced or know of similar situations
Even right here has been a good place for you to talk Tarie
I can sense from your post how you must be feeling, and sure understand why! We are here to support you too

and I know if anyone has experience or advice to add for you here, they will
again, welcome