They have checked CPK/ck, adolase levels on me which are always stone cold normal if not below normal.. my needle EMG is always negative too.. so they don't think it's myositis, they dont' think a muscle biopsy is indicated at this time.. though I personally think I should have one! MY ANA is always elevated, and was most elevated right before I crashed and got IVIG..
I don't know why everyone seems so against muscle biopsies... yes it's a bit more invasive than other things.. but shoot -IVIG isn't exactly not invasive either! We are alwasy on the fence about starting an immunosuppresant with my IVIG... I tried steriods once, but started at 60mg (they didn't advise me to taper up, like I have learned here is important).. so it made things worse.. GOOD LUCK!