Quote:
Originally Posted by swe3tkisa
Hi
I am all new to this forum.
I was diagnosis with RSD almost a year ago. and it all began with fracturing my right ankle.
I tried 5 consecutive sympathetic nerve blocks and it all failed. it was good for few days at first and then it decreased the effect down to only good for 1 hr when the numbing meds were in my system. It all made me more depressed when it failed.  I have 3 beautiful children and they think i am boring since i cant do anything with them actively anymore. I am limping around (cant walk normal) i cannot drive because i do not have motion on my ankles anymore.
So my previous dr refer me to big hospital and my new dr suggested me either pain med pump or the SCS. i never heard about either one of them. ( not that i knew what RSD was before either)
just thinking about something will be in my body for rest of my life gave me little unease. but if thats what it takes i am willing to do it. but before i decide i want to know how the others' experience.
Plus is there any advice on how to take care of my foot better at home? my kids are little and sometime they accidentally tap my foot and i will be burst in tears and my foot will be more swollen than it was for couple days. (my foot is swollen every day but i do have good days and bad days)  . i just dont know where else i can go and talk to anymore. my previous dr didnt give me any much info that was helpful than what i read online.
thank you so much for reading this 
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Hi mad welcome to Nt, I had an scs been successful with the neuro pain relief but develop problems in the opposite limb were the battery was implanted, is a long ride since last year surgery,the original, a year later finally got approve to repositioned in my abdomen,work better but still only neuro pain no bone pain,suck, I never knew that before , now my good leg is also presenting the typical morrow effects on rsd , same feeling,same pain,without any reason, upper buttuck pain ,lower back is been added to my whole picture.
Takes time to recover from scs surgery, you have to follow the exact dr recommendations otherwise your wasting your time,is hard when you are to active, first week a lot of pain, unable to take shower and after you ok to do it, you need help with showers, wash your hair, not been able to tide you own shoes, can't use washer machine,drier because of the bending, you lead wires might came of ,also reaching stuff from high will make you to stretch you arm and pull the wire, bending is a big no no for the first 6 weeks, my pm dr said is ok by my ortho recommended time off from work at least 3 months for full recovery, my is still in recovering after a second surgery and also an unexpected gallbladder surgery two months ago.
Scs is not for everyone,consider that option your last one, is not what you expect and get used to is almost impossible, maybe other people had better results ,my work good , but game additional issues and back me up for a year, good luck In any decision you take but keep all pros and cons on any medical treatment and procedure, in my case I needs to be at least at certain percent to be able to perform at work but still did not happen,keep that also in mind, best wishes and let us know who everything went , blessings from Jesika ,

Any question don't hesitate to ask, I. Here to help.