Hi konzy,

I am a newbie here.No expert,just advice.It seems you have two issues.The one regarding your symptoms and the other about getting to talk to your neurologist again.Readings your symptoms,it seems you have both peripheral and autonomic neuropathy.Good news is that your mri and checkup were normal.I would suggest to get your vit D and calcium levels checked.Your neuro should have asked for it,that's what mine did.You say you are from uk,you guys never get enough sunshine over there for vit d and no food has enough vit d.So,I am guessing your vit d levels must be low.Vit d should help with these classical symptoms of pn. About your ice cold hands,that's probably because of poor blood circulation.You might have noticed your veins in the hand are not dilated enough.I had the same problem.It is something very similar to Raynaud's phenomenon.My vit d were very low once.(7.7) After I got them to 45 after 3 months,my veins in the hand remain dilated and as a result now they are never cold,except when the temperature is low.If vit d doesn't solve this one,just ask your doc for a vasodilator,your blood will keep your hands warm.

I don't think you have any disease, severe or permanent nerve damage.

You don't have family support or partner,so I can imagine how horrible you must be feeling.

I don't think it's a good idea about sending letters.If I were you in the same scenario,i would go to another neurologist.Also,please have an emg and NCV to rule out any other complications.Keep popping b12 and other B-complex vitamins.Your auto nerve problems should slowly fade away.Hell, the other peripheral issues can take years to heal,as my neuro told me