Hi,

I've been reading this - and I'm going to try to find my slides - I had 5 salivary glands taken out about 5 years ago and they were looking for Sjogrens - I need to dig out the results and see if the slides are still around... cause, my docs are again looking for amyloid....

I'm having intensive cardiac testing done - because I now have cardio-myopathy affecting 3 valves, ejction fraction down, waiting for resuts of test from a couple days ago and have more cardiac testing next week - but 3 cardiologists tell me it looks like amyloid... I've had a positive and negative fat biopsy - they are only 50% effective at detecting the disease, people often look for years for this and then finally find after biopsy of many organs even with normal bloodwork... my blood tests are ok - but my docs are still very suspicious and after the cardiac testing is done they are going to do complete GI testing for amyloid with lots of biopsies... this disease can unfortunatey hide in any organ...

I guess if all the slides are already stained from the salivary glands -I believe for amyloid they have to stain with congo red - they would have to redo (thats biopy that HURTS by the way)... would love to know if anyone has the answer!