YOU ARE AN INFORMED Spouse! That alone, qualifies you to SPEAK UP! Just say, 'this doesn't seem right...I want to speak to my neuro NOW...YOU NURSIE Get them on the PHONE NOW! Next The Pharmacist..do the SAME...You as a representative for your spouse have every right to express concern and have it addressed PROMPTLY as within 20 minutes BEFORE any 'tampered' blood product is put into YOUR ALAN! I expect Alan is very laid-back and accepting....this type of stuff calls for ASSERTIVE and often [as in my case-AGRESSIVE] ACTION... Alan has the heart issues, this is not something to shrug off! Not at ALL! Melody, we all know you are the nicest of Assertives, but you may have to get nasty agressive here...trust has been compromised...big-time...by all involved in the 'process'...

Don't be petrified about the next infusion...just be sure you get a more comptent set of Pharmacy/infusion nurses! That simple! Golly! At times I wish I was there with you to talk to these people! Their ignorance could kill us! Infusing IVIG is NOT changing a wound dressing for crikeys sake! It does take training and skill, and further training about what all to DO and LOOK out for! JUST LEARN from the Experience! Memorise all the info on the 'prescribing info' sheet! VERBATIM! Word for Word!

That's why I changed from a year of infusions AT A HOSPITAL,, cause they didn't know? to home infusions with a nurse who DOES KNOW! Believe me, I've got the 'times' it takes an ambulance to get from here [my house] to an ER down pat...it's far better potential for accurate treatment than I got IN the hospital IN their specialty infusion ward IN their cancer ward? Something is wrong in that whole picture, and it's not wrong with ME or YOU, it's the systems, and how well any home nurse is educated in such infusions...I don't know about you, but I want someone who KNOWs about this stuff and all it entails....to treat me...It's almost a quiz? But if that's what it takes, well you have to do it!

Oh dear! I wish I could be there to hold you-all's hands the next time! - j