Hi
Welcome here and sorry you have RSD. You came to the right place. I read several other replies/posts and people here gave you fantastic advice, thoughts input so I won't repeat it. I will say that you seem to have a fighting spirit and full of energy and drive so that will help you get through this, help you find helpful doctors and keep your mind in a good place. Treatments have gotten better over time and RSD is not a short, simple disease so it can take years and various treatments and you have to make adjustments and deal with some new normals if that makes sense. BUT you are young and there is always something new on the horizon so you never know what meds or treatments might come around!!
Don't do anything drastic (amputation). RSD is not like other conditions or injuries. It has its own mind....
hang in there
Quote:
Originally Posted by emptydepth
Okay, so ive had my RSD for about two years now, i have it in the side if my right knee and sometimes in my shin. i got it from sports and an accident, im actally not sure what exactly caused it. Anyway, i desire more than anything to be able to walk normally again, ATLEAST. Fortunately enough, my Rsd hasnt spread to anywhere else in my body.
ive done most everything to try and fix it. ive had several lumbar Nerve blocks, ive tried physical therapy, ive tried a tenz unit (still use it on those occasional days with random nerve spasms) Several Seizure Medications, waiting (maybe not long enough). Anyway, ive tried everything short of a Ketamin infusion and Amputation. I was just wondering if anyone here had either heard stories of Amputations or had actually had one done? Or if people had any advice as far as treatment goes? 
As a side note, i am slightly concerned about cost but only because im a minor and im unsure what my parents insurance will cover. Id like to know what im dealing with first hand before i go to them for fear that theyll reject it. While i may be concerned with price of amputation and prosthetics, the price of walking and atleast being able to function semi-normally is priceless to me... Thank you for any help you provide |