Di
I think I know what you mean when you say you feel you are at a road block and I'm sorry you are in that place right now. I hope it is just a plateau and thing start to improve.
I've never tried bio-feedback, so I'm afraid I can't share any useful information. But I hope it helps to know I understand and I'm pulling for you. Even though I don't post much, I do care. (It is just that my cripsy hand that makes posting a bit difficult.)
I've hit a plateau myself, despite physiotherapy. I do have a good amount of function, so I'm not complaining. But I know how difficult it can be when things just seem not to improve no matter how hard you work on it and I certainly am familiar with the brave, happy face and voice.
For me, I think keeping a positive attitude is important. Actually, my happy face is probably more for me than it is for those around me.
Hang in there, Di. I know it is hard but you are strong, you can do this.
Kim
Quote:
Originally Posted by AZ-Di
I haven't posted much about myself lately. I just had nerve block
#25 so my hand will allow a little one finger typing.
I just got a call from my P.M. Dr. office & they found a place for me to get
biofeedback counseling for pain. I had no idea they were working on this.
It's a little pricey - anyone else tried it? Does it help with the emotional
aspect of things (I could use that!) How often do you go?
I think I was picking up clues from nurses at last nerve block, that scar tissue
& other various issues may be developing from having so many.
BTW, I've been through SCS trial, Lidocaine infusions, accupuncture, calmare,
75 and counting P.T. sessions, +many meds.
The pain is manageable with blocks but they've pretty much "called it" on any
further improvement on the contracture & movement of my hand.
It's also spreading to my left foot but I walk & "swim" & move it all I can.
On the emotional level I just put on the brave, happy face/voice when necessary & do all I can for family & friends, but I feel like I'm at a road
block & don't have words to describe it. Any thoughts?
|