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Old 06-14-2014, 10:25 AM
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en bloc en bloc is offline
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
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en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
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For most there is NO treatment. However, some research docs think that IF (and only IF) caught within the first year of onset, that aggressive treatment with immunosuppressives and monoclonal antibody--B cell treatment (Rituxan, etc) MAY (and only MAY) reverse damage already done.

After the first year (and earlier for some) damage is permanent and irreversible. Then it is, as you said, symptom treatment only.

I don't know how long you have been dealing with this, so that's why I tossed it out there for consideration. I am 18 years into this, so no possible chance for 'treatment' other then symptomatic relief.

Do you have any other autonomic symptoms...like BP, heart rate, temp regulation, etc?
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