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Senior Member
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
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Senior Member
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
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There have been a few on the Sjogren's World forum that have tried Rituxan...with some success. But I don't know specific details of what they had wrong and what it helped. It's not something widely used yet as it's new for this purpose and very expensive (more so then IVIG). Not all get the whopper side-effects, yet others had a horrid time with the first infusion and didn't go beyond that.
I have never tried it, because I'm way outside that window and my doctor doesn't feel the risk from the infusion is worth the very low chance of it helping anything.
The neurontin can cause those side-effects. It may be hard to look aside from them but you need to see if it's helping the PN pain/burning at all. The side-effects sometimes subside after a bit. But if you have to increase the dose (which is LIKELY) then it will compound the side-effects until you get used to the medication.
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