That crochet forum I go to, we have a thread on the forum that's specifically for talking about medical issues. Some of the girls there have been really helpful when I whine about the MS there. I think one girl on that forum also has MS. She doesn't post much because she doesn't have the time/money to be on the forum all that much. But it's nice that there's someone there who understands the MS stuff. Several girls on that forum have chronic medical conditions, and there's a few that have had problems with depression. They've been really really helpful.

It's also nice that they don't mind that I swear like a sailor. Swearing helps a lot sometimes.

I spend way more time on that forum than anywhere else on the internet. Probably because we're all crocheters and knitters there. I try to use crochet and knitting as a stress reliever. That other forum is also a closed forum. Internet searches don't bring up the specific conversations that we have there.

It's just good that I have that forum, and this forum to come to for whining about the MS, and other stuff. I like it here at Neurotalk because you're all full of information about MS. And it's fun here too, even if I can't swear like a sailor here.


I had a bad night last night. Didn't sleep till 7ish this morning. I have a headache, and I've felt queasy for a couple of days. I have a non-MS issue that came up yesterday. (nothing serious. Just annoying)

All my muscles hurt, and I can barely move. I've pretty much given up on the PT, because it wasn't really helping. I'm going to try again with getting some PT. But I don't think anyone realizes what I want, even tho I've told them. I want something that's a bit more intensive. I keep getting PT from people who don't want me to show up more than once a week for a half hour at a time. I've used up all my insurance allowed PT. (not that the insurance actually pays for it. My deductible is huge, and I haven't met it yet)

I think this is part of why I've been a bit depressed. No one seems to be paying attention to what I want. Even tho I've begged. I try to do the PT stuff by myself, but I just can't seem to do as much alone, as I think I could do with someone helping me. Going to call my neuro tomorrow, and ask what I'd have to do to go to an in-house rehab or if there's some where else I can go to do something a bit more intensive out-patient.