View Single Post
Old 06-16-2014, 11:12 PM
Conductor71's Avatar
Conductor71 Conductor71 is offline
Senior Member
 
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
10 yr Member
Conductor71 Conductor71 is offline
Senior Member
Conductor71's Avatar
 
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
10 yr Member
Default

Quote:
Originally Posted by Nan Cyclist View Post
He ends the book with a couple of sobering points: "Once so mysterious, degenerative brain diseases are beginning to reveal the mechanisms by which they compromise nervous system function." and "For the wars on cancer and heart disease there are a myriad of advocates and pipelines filled with hundreds of promising drugs--for neurodegenerative diseases, the ranks and the pipelines are virtually empty."
It is sobering to hear a scientist so key to unlocking the mystery of brain disorders basically acknowledge what many patient advocates have felt for some time now. It only reinforces how we would probably make more headway if these diseases were not treated as separate entities but rather on a continuum by both researchers and patients. There needs to be a larger representative foundation focused on neurodegenerative disorders as a group. However, there is little tolerance for reality in patients, I find. If you are not optimistic and inspirational every moment you can be shunned in social groups online. Not going to make any progress unless we can change that dynamic.
Conductor71 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
johnt (06-18-2014), lab rat (06-17-2014), Nan Cyclist (06-17-2014), olsen (06-17-2014), Stand Tall (06-19-2014), Tupelo3 (06-17-2014)