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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Dear Superstition
I have severe small fiber neuropathy and understand some of what you are going through.
The drugs make me foggy brained and I can't find the exact words I am looking for sometimes. My family tends to finish my sentences for me.
The problem I had with my husband was that last year when I was jumping from dr to dr trying to find out what was wrong with me (dx was due to diabetes and then 6 rounds of chemo) and he actually thought I was 'faking' my pain. We have been married for 34 years and he of all people should have known better. When I finally got a skin biopsy done and he read the results he finally understood what I was going through.
I also get 'well you look fine' which drives me crazy ! They don't see me on the days I'm in bed because I can't walk due to the pain.
Maybe you could print some information out on your condition that explains what you are going through and ask them to read it. Might help and might not...just a suggestion.
I've just been dealing with this a little over year and this has ruined the life I had. I had to file for SSDI after working all my life and I'm only 52. I can't cook, clean, grocery shop or drive. The house is a mess. My daughter buys my groceries for us and cooks for us every night.
I hope things start getting better for you and please keep us posted. Sometimes it's good to come on here and just let it all out.
Take care.
Debi from Georgia
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