I'm glad that you have a case worker helping you with the SSI. I know it sucks to have to hire an attorney; I had to also after I applied for SSD and it kept being denied. She was well worth it, though, and helped get my case approved at a hearing before a judge. Didn't even have to write her a check; her fees were taken off the top by the Feds before paying on my claim.

If you really want to find out if you have TOS, there is a top doc in Seattle who specializes in this area of medicine. His name is Kaj Johansen and his contact info is in the Drs. and PTs thread at the top of this forum.

TOS is not an orthopedic problem. I was misdiagnosed for years by orthopedic surgeons (and hand specialists) before a neurosurgeon finally sent me to a top vascular surgeon whose practice includes the treatment of TOS. That doc diagnosed me on the spot based on my symptoms and clinical findings, with an extremely advanced case of true neurogenic TOS. I had suffered a great deal of nerve damage and muscular atrophy in the years and years it took to obtain an accurate diagnosis. Would hate to see that happen to anyone else!

Hope you and your docs figure out soon what is going on with you so that an effective treatment plan can be developed for you.