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Member
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Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
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Member
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
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It's one of those days that my soul agonizes...
Summer is taking off with lots of activities and my family is about and out doing and I'm limited or done completely. Stuck at home.
I was so very involved in everything and knowing everyone. Now when people see me the look of pity falls over them or the awe face. I hate it. I just want me back and I know I need to stop doing that but there is no magical way to stop no matter how hard I try to accept the new normal.
It's one of those days and they are less and less but they still happen and I still feel my soul being squeezed til it hurts so badly. If will healed us I'd be better than I was even before the accident.
My daughter needs me healed. She struggles with this. My attitude is positive and go getter around her but the differences in me and changes in our life are still hard for her. She goes to a neuropsychologist but this is a long road.
She carries worries in her now and her peace is unsettled. She has fear that was not there before.
We can't fix this for her. We are closer than ever and a team. But it's all painful to see.
I hope I can look back someday and say that her and I are much healthier in everyway and that she has gained her strength, confidence, and peace back.
Just one of those days and I can't wait til it's over
Jace
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*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.
*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.
*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.
*Working on getting to know and accept the new me.
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