Quote:
Originally Posted by Luthier
I have had RSD for 4 years, was in a motorcycle accident that nearly ripped my leg off. I developed RSD after that injury. When I found out that I had RSD was when I started going through the pain management program. at the time I had insurance. so it wasn't that big of a deal for me. and then I lost the insurance when I went to college. Graduated. Mind you I didn't take any kind of medication while I was in school, only vitamins, which only go so far. Reason being that it was a wood shop environment. didn't want to be drowsy from the meds and cut off a finger lol.
I now work in a wood shop environment, and I'm not willing give up my life for this curse. I still don't take any kind of medication. Except now of course since I'm recovering from the surgery. But when I go back to work. I still won't take any kind of medication.
So.....
I decided to get the SCS after the trial because I'm a pretty active guy despite my RSD I don't let it control what I do. Sure it overpowers me sometimes and I have to take a break but other than that I'm just trying to live my life. I work a full time job at Dean Guitars (that's the wood shop environment) and I also play bass in not one but two bands. I got the SCS because it fit best to my way of life. It also made me feel good the sensation that I get off it is pleasurable. and it had better rate of success as far whether it helped or didn't help for patients than it's predecessor the "Precision". I got the "Spectra" (Boston Scientific). I have been following the instruction of the post opp to the best of my ability, my awesome girl friend has been getting anything that I drop or can't reach. Helps me up and down, Showering....etc.
I'm a big dude (6'7") so they gave me the paddle instead of the lead, and I guess that it's a bigger paddle than they normally use, because for the trial they used just a regular sized lead and it came out in two days because they didn't account for the amount of torque that I posses when I move, also, my vertebrates are larger than most (go figure). Now with that said, doesn't mean that I can run marathons a week after the surgery. I'm still taking it easy.
I'm still feeling good and I'm glad that I did it.
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If you decided to get scs permanent keep in my the recovery time is longer than the trial period,and you need help to do several of your daily routines ,shocker,laundry,dressing, bending and twisting a big no also your battery can migrate and suddenly your signal can get lose or hitting the wrong areas ,that's painful.
whatever you decide we hope works the way you expected, it was hard for me ,I will say is still hard for me to deal with a second repositioned from buttock to abdomen, my left was compromise with rsd and make it worse, my pm dr did not considered rsd but two of his colleague agreed that rsd was already in my good leg now I have rsd in both, a second device might be implanted or cables added depending on what the neurosurgeon decide.
You have to give enough time to heal ,about 3 months for the permanent,that what my PCP which is my ortho ask for me being out work for three months to be heal completely but is being around 18 months and I still not able to go back to work, rsd and scs makes the restriction impossible for my company to accommodate me ,so thing also how you will be affected in the future ,at course is only your section and hope everything work well in the first try,best wishes and good luck from Jesika .