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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Good morning Susanne C :)
First off I want to thank everyone who either replied to this thread or read it. I appreciate it very much  What a great bunch 
Susanne....thanks so much for sharing. I did not sleep at all last night. I helped my daughter in the kitchen last night finishing dinner and I knew not to do it but did anyway...stupid me. Even the pain med would not bring the pain down to a level where I could sleep. Hands, arms and the dang feet ! I was so mad I almost got up and posted a rant to SFN.....how dare it do this to my life ?
Being on my feet for any length of time is my enemy. I have every type of symptom you could name happen to my feet in a 24 hour period. Some days I can deal with it and some days I can't. I'm tired of not being able to do anything, can't clean, can't stand to cook, can't clean, can't go anywhere except the dr's and on and on....you all know the routine.
Worthless.....yep Susanne that's exactly how I feel.
My daughter, Bless her sweet heart, has been cooking for us and my mom every night for weeks. Either here or at her house....only one house between us now. My mom loves it but my husband isn't too thrilled with it. I'm very close to telling him if he doesn't like going to her house to eat then he can start cooking...something he has never done since we've been married.....I'm confident that he can cook......he's a smart man. I am so glad that your husband and son help you out.
And I'm right there with you on the pets too.....we have 2 small inside dogs and one 20 lb fat cat named "Bob". My husband rescued him and he was almost dead. He weighed about 5 lbs....an operation and 4 months later he weighted 22 lbs......that was about 7 years ago I would say my house is not presentable either......I'm sitting here looking at an A1 Sauce bottle that needs to be put up....good luck with that. May happen in a day or 2. Bob the cat has used the side of my couch....the side you see when you come in the door, as a scratching post and I don't even care.....I love that cat and can replace furniture but can't replace good old Bob ! My outside cat, Black Kitty, lol never named him.....sits on the kitchen window sill.....soon after I had my windows replaced he torn the screen up....all of it ! And I don't care about that either....I get so much pleasure walking into the kitchen and seeing him sitting in the window
Yep....light the candles before they get here...lol
Very sorry to hear about your daughter......I'm guessing it causes a lot of spinal pain ?
And I'm so glad to see you back....always love your posts.
I'm really going to try and stay away from an SCS...I don't even know if it works on SFN or not. The only pain mgmt. dr I saw was nice but just jumped on the SCS train when he saw my biopsy results.....0....nothing....no A & C fibers left or whatever happens to them. I do have PVC's (heart) and a friend says that might be a factor in me not getting one also. I know everyone has PVC's but mine got up to 33,000 in a 24 hour period.....every 3 heartbeat was a flip flop. Thank goodness I could not feel them. They did heart ablation and the # came down to 672 (weird that I can remember that) and then after chemo they are back up to approx. 7,000 as of last June. I really need to do the monitor thing again but will wait until I'm ready to have the ablation done again. Dr said it was coming. Wasn't the worst thing I've ever been through but I won't be rushing up to Emory anytime soon to have it done. I had to be fully awake. Any helpful meds for me would quiet my heart PVC's and they needed to see them to zap them....lol....burned 11 places in my heart that day
I'm going to try and lay down for awhile....getting that wozzy,haven't sleep feeling and the words on the screen are blurring
Take care sweet Susanne and please keep us posted.
Debi from Georgia
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