Member
|
|
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
|
Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
Hey Posada :)
Quote:
Originally Posted by Posada
I also have been diagnosed with small fiber neuropathy. I am 77 years old and was in perfect health until 10 days after a high dose flu vaccine for persons 65 and over was given to me by my Dr on September 14 2012. I burn constantly all over my body. I have been all over including the Mayo Clinic and Cleveland clinic. I have tried all the natural suggestions as well as prescribed meds. Nothing seems to work. I even tried pain management. "I think the hardest thing for most of us to deal with is feeling guilt about complaining or the inability to clean, cook, etc., as well as we once did." I feel so horrible that we sold our beautiful home and moved to an independent living facility.
I have been told aside from this horrible condition I am a perfectly healthy petit women. This will not cause death. I guess as my neurologist at the Cleveland Clinic said" this is the new me". Adapt. At this moment I am on the last thing I am trying Lyrica with our any effect at all. I am taking 50mg twice a day. I am sure they will want to up it but I think I will elect to go off it and just try and learn to live with this horror that I feel strongly was brought no by the vaccine
|
Posada.....Adapt....easy to say but very hard to do. But I guess we are all finding our 'new normal' as they say.
I am so sorry you are going through this and had to sell your home 
My journey with SFN is only a little over a year old and I see no end in sight. I have not tried anything except what the neuro prescribed but have decided to go on B-12 first and see if it helps any. I'm on gabapentin and a small dose of Cymbalta for the SFN....I take vicodin every three hours to try and keep the pain level to where I can try and deal with it.
Oh the joys we all share. Take care and keep us posted on how you're doing 
Debi from Georgia
|