Kathie, How is your weakness overall? Steroids can make you a bit worse before you get better.

You might also have atelectasis from not breathing in deeply enough. That can cause pain, too. Did they do a chest x-ray?

I'm worried about you. Are you in bed? That's where you should be post-crisis. Do you have anyone helping you? And I mean doing things such as making meals. I couldn't even do that after my crisis. I couldn't do anything! Not even being on a computer.

If you feel you are getting worse, dial 911. They will have no choice but to do pheresis.

I hope you'll be okay. It's survival time, and you can't risk anything making you worse.


Annie