I am in my recliner. Can't get up the stairs. I am like I was pre-crisis. If I don;t do any activity, i am fine. I feel those chest wall spasm/pain but they are mild yet. I am trying to avoid crisis/ER.

Called neuro and GP. Do you believe they want me to go out for blood work andd chest CT to rule out pulmonary embolism? If I step out in this heat and do that execrtion I will not be able to breathe and refused. Neuro won't order IVIG without chest CT. Looks like I am on my own. If it gets worse I am just going to up the prednisone on my own. If I don't get better, I guess it is ER again.

Why can't they treat you to avert crisis? Why do they have to wait for you to hit rock bottom?

As always Annie, thank for you concern. It is so nice having someone to talk this over with. MG makes you feel very alone
kathie